Treatment of Disabled Children and Adults Should Bring ‘Shame’

  • Systemic failings worsened by the impact of COVID-19
  • Daily life still impossible for many as we emerge from the pandemic

07 April 2022

The Children’s Law Centre (CLC) and the National Autistic Society NI have warned that disabled children and adults are being discriminated against because of the lack of adequate service provision to meet their needs. The charities, who advocate for people with complex and high support needs, witnessed a sharp increase in the number of people, particularly children, who have lost access to vital services in the past number of years.

However, both charities insist the systemic failings have been there for a long time, and only worsened by the response to the pandemic. While others in society return to everyday life, many disabled children and adults have been ignored and left isolated, living restricted lives and having their freedoms and autonomy severely curtailed.

Speaking ahead of a special hustings debate titled ‘Forgotten Voices’, the charities called for urgent and meaningful action to address the failings.

CLC Mental Health Solicitor, Eamonn McNally, said: “We should be horrified and ashamed at the treatment of disabled children with complex needs. What some young people, as well as their parents and carers, are having to go through is nothing short of a disgrace in a modern society. How can they expect to live their lives without access to the services that make that possible?

“We know from recent reports that the health and well-being of disabled people has not improved as restrictions have lifted, and that their access to health services continues to remain limited. This is reflected in our everyday casework at CLC, which has grown in both size and complexity.

“Respite services have been crippled for many years and the impact of the pandemic has exposed the inequalities for disabled children and adults. But we can’t hide behind the pandemic or make excuses, these failings have long been apparent. Disabled children have a wide range of legal rights and those rights include access to services that allow them to live a full and dignified life, as well as services to support carers by providing them with the help they need to maintain care for their loved ones within the family home.

“The failure to provide adequate services to children with complex needs and their families breaches a range of fundamental human rights.”

Shirelle Stewart, Director of National Autistic Society NI, added: “As we emerge from the pandemic, much of society is feeling the benefits of a return to normal life. Yet this isn’t the case for many disabled adults and children with complex care needs, including many autistic people. Many are still facing a daily struggle to cope, as services remain wholly inadequate in providing for their needs. In some cases, already stretched services have disappeared completely.

“When are we going to start listening to the people who have had to suffer most during the pandemic and start giving them their lives back? We need to listen to the voices of people with complex needs, their families and carers. Their concerns need to be acted upon by the government and public authorities, recognising their protected status under Section 75 of the Northern Ireland Act. We need to see a significant drive towards joined up, properly planned and funded cross-departmental work, including the collection of disaggregated data to assess the level of unmet need.

“Disability discrimination in education settings, including informal exclusion, part-time schooling or no schooling, lack of required therapeutic input, failure to provide school transport to disabled children with complex needs and unauthorised restrictive practices must end. “Anything less than swift and targeted action by government departments and public authorities to address these unmitigated inequalities will be an abject failure of human rights compliance.”

Case Story

Jillian Black is mum to Peter who is nearly twenty. Peter is autistic and has a severe learning disability, ADHD and uncontrollable epilepsy, Peter can often become distressed because of his profound disability, which can result in harm to himself, others or property. When Peter was in children’s services he accessed four overnights a month. Although this was not a lot, it provided a welcome break to providing the 24/7 care that Peter needs.

When Peter turned 18 he entered adult services and the family have never been told what their assessed respite is. Since becoming an adult, he has only had four nights respite, two in December 2020 and two in spring 2021. The respite unit he was using had to be closed to house an adult on an emergency placement.

Peter’s mum, Jillian, said:

“You just feel absolute desperation when you are told that you will have no respite. We don’t begrudge our caring role but providing care on a 24/7 basis with no breaks really takes its toll. There is only me and his dad, as his sister is at university, so we are exhausted. No one would expect anyone to work all that time with no breaks.

“Peter is at the age where he needs to become less dependent on his mum and dad and allow others to help, but the lack of respite is not allowing this transition to happen. We don’t know what will happen in the future.”

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Youth@CLC Launch Children and Young People’s Survey

14 March 2022

Image of the 'Rights Here, Right Now' logo

Youth@CLC, the youth advisory panel at the Children’s Law Centre, has launched an important survey to collect opinions and first-hand experiences of children and young people as part of the UK reporting process to the UN Committee on the Rights of the Child. The survey will be used to tell the UN Committee what matters to under-18s here, how their rights can be better protected, and their lives improved.

Image states: Tell us your thoughts. Click here to complete survey.

The survey can be found here and is open between 14th March and 14th April 2022. The results of the survey will inform a children and young people’s report to the UN Committee as part of the 2022-2023 reporting process. It will influence the outcome of the UN Committee’s examination of the UK government in 2023.

Children and young people can click here to find out more about children’s rights, the UNCRC and the survey.

CLC Youth Participation Worker, Sinead McSorley said: “This is a very important way for children and young people in this jurisdiction to feed into the UNCRC reporting process. Their experiences and opinions are key to understanding if the UK government is fulfilling the obligations it signed up for when it ratified the UNCRC in 1991. We know children’s rights have a massive impact on the lives of children and young people, from education and healthcare to leisure and youth justice. However, we can’t fully understand how well these rights are being protected, or where the gaps are, unless we get the views of as many under-18s as possible.”

Image of girl in wheel chair, with text reading: "Rights Here, Right Now. Children and Young People's Survey. For the young people's report to the UN Committee on the Rights of the Child. Open between 14th March - 14th April."

“The last UNCRC report was sent to the Committee in 2015, but so much has happened since then, including the UK’s decision to exit the European Union and the outbreak of COVID-19. It’s our experience, and the experience of a wide number of children’s organisations, that the gap in children’s rights here has grown into a chasm. It’s vital that we gather the views of children and young people to better inform our understanding.”

Wren, a member of Youth@CLC, said: “As part of the children and young people’s report, we will be carrying out a survey and holding workshops with some of the most vulnerable children and young people here to better understand where the government might be failing in its obligations. It’s really important that we gather as many views as possible to give children and young people a real voice. The reporting process doesn’t come around every year, so please make sure you don’t miss this opportunity to have your say.”

We have developed some materials for teachers and youth workers to prepare and assist children and young people to complete the survey:

The ‘Rights Here, Right Now’ survey is being conducted by Youth@CLC, with assistance from the Children’s Law Centre, Dr Deena Haydon and Save the Children NI

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Equality Commission To Investigate High Street Voucher Scheme

19 December 2021

The Equality Commission has decided to authorise an investigation into the High Street Voucher Scheme. The investigation follows a complaint from a young person, under 18, who alleged that the Department for the Economy failed to comply with its approved equality scheme when making the decision to exclude under 18s. The young person has been assisted in their complaint by the Children’s Law Centre.

Claire Kemp, Policy Officer at the Children’s Law Centre said: “Decision makers have a duty to ensure the decisions they make do not adversely impact or discriminate against sections of the population. This includes children and young people. To ensure they avoid making decisions that discriminate they have to carry out an equality screening exercise at the earliest opportunity. In this case it was clear the Department for the Economy failed to do that.

“We’re happy to assist this young person in their complaint and are pleased the Equality Commission has authorised an investigation. The Department was in the position to publicly announce the High Street Voucher Scheme in February 2021 but evidently failed to carry out an equality screening exercise until the young person complained. In fact, the screening document provided to the young person was completed, signed off and published on the same day as the response to their complaint on 10th September 2021. This was not the earliest opportunity as is required, it was an afterthought.

“Children and young people under the age of 18 play a vital role in our society. They contribute to the economy, play a crucial role in many parts of the high street economy and played a key role in navigating our way through some of the darkest months of the pandemic. Rather than treat them as an afterthought, we should be looking at ways to include them in the recovery.

“What chance do children and young people have against discrimination if Executive departments fail to uphold even their own equality duties?”

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Heightened Risk of Child Trafficking “Deeply Concerning”

01 December 2021

Speaking ahead of the 2021 Children’s Law Centre Annual Lecture, UN Special Rapporteur on Trafficking in Persons Especially in Women and Children, Professor Siobhán Mullally has raised her fears that the Nationality and Borders Bill will heighten the risk of trafficking and re-trafficking for child refugees.

Professor Mullally’s lecture will be delivered on Thursday 2nd December at 3:30pm and is titled ‘Responding to Child Trafficking: Rights Vs Rhetoric’. The lecture comes only a week after at least 27 people, including children, drowned crossing the English Channel. Following the tragedy, the UK Home Office was widely criticised for its hostile environment towards refugees and asylum seekers.

Speaking ahead of the lecture, Professor Mullally said: “The Nationality and Borders Bill is deeply concerning in its hostile approach towards refugees and asylum seekers. Immigration practitioners and human rights organisations have consistently raised concerns that the identification of victims of trafficking will become more difficult. Indeed, the Independent Anti-Slavery Commissioner has also made this very point. I have also officially written to the UK authorities, along with other relevant Special Rapporteurs, to highlight my concerns about the Nationality and Borders Bill and its compliance with the State’s obligations under international law to prevent trafficking in persons.

“There is little doubt that the risk of trafficking or re-trafficking will increase as a result of this Bill, particularly in relation to children. It will make it more difficult to identify victims or potential victims of trafficking, with changes to the ‘reasonable grounds threshold’ particularly concerning. It will also weaken access to services that meet the complex individual needs of victims of trafficking, and potentially treat child refugees as criminals.

“There is an established international rights framework set up to protect refugees and prevent trafficking. Such serious departure from this framework, coupled with the current rhetoric towards refugees, will have devastating consequences for people, including very vulnerable and traumatised children. Rather than address the refugee crisis and tackle trafficking, the Nationality and Borders Bill is a gift to people smugglers.”

Paddy Kelly, Director at the Children’s Law Centre added: “We are very pleased that Professor Mullally agreed to deliver our 2021 Annual Lecture. It comes at a critical moment where much of the good work carried out in this jurisdiction to tackle the causes and effects of child trafficking could be undone. It also highlights the importance of a strong rights framework, including domestic implementation of those rights in the protection of children. Just last week we witnessed the terrible impact of the failure to protect the rights of refugees and asylum seekers. Until we recommit to the 1951 Refugee Convention and the UN Convention on the Rights of the Child, we will continue to fail child refugees.”

Download our briefing paper on the Nationality and Borders Bill

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“The Dark, The Fear, The Cold And The Desperate Hope”

25 November 2021

Children’s Law Centre Immigration solicitors have offered their condolences in response to the tragic loss of life in the English Channel. The solicitors have highlighted the lack of safe, legal routes as a key factor putting refugees at risk. They have also warned that the situation will worsen as a result of the Nationality and Borders Bill, and current rhetoric painting refugees as criminals.

Barbara Muldoon, Immigration Solicitor at the Children’s Law Centre said: “We would, first and foremost, like to offer our sincere condolences to those who have lost loved ones in this tragedy. Probably every single person on that boat had someone who was waiting to hear that they had crossed safely. I can’t imagine the grief they currently feel.

“It is deeply troubling to encounter a loss of life on this scale. The lives of vulnerable, innocent people who were desperate for a safer life, including a number of young children.

“At the Children’s Law Centre, we represent the majority of unaccompanied asylum seeking children in this jurisdiction, in their application for asylum. Almost every young person has recounted the horror of small boat crossings at some stage of their journey. The dark, the fear, the cold and the desperate hope. It’s difficult for many to understand quite how desperate that is, but it is the reality they face.

“We owe it to these people to look at why a tragedy like this happens, and we can’t hide from the fact that this loss of life was preventable. Immigration practitioners have made it clear for a long time that this is the reality forced upon refugees due to the lack of safe and legal routes to asylum. Separated and unaccompanied asylum seeking children in particular have no other option due to the ‘blanket prohibition’.

“We also need to face up to the reality that the Nationality and Borders Bill, alongside the current UK Government rhetoric towards refugees and asylum seekers is not going to prevent this. In fact, the vast majority of practitioners agree that things will get worse by further criminalising refugees and weakening safeguarding measures for child refugees. Clause 40 of the Nationality and Borders Bill would even have made it a criminal offence to intervene and attempt to save these drowning people, including women and children.

“We need to collectively denounce the dangerous rhetoric around refugees and face up to the reality that there is no ‘migrant crisis’ in the UK. There is no ‘influx of migrants’. Those coming to the UK are seeking asylum. They have a legal right to do so under the 1951 Refugee Convention. We must re-commit to international obligations and ensure that we protect these people, including young vulnerable children, from exploitation, from the clutches of traffickers and from perilous journeys.”

  • A briefing note on the impact of the Nationality and Borders Bill on children, anti-trafficking and devolution can be found here.
  • Statistic on asylum in the UK can be found here.
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