Youth@CLC during a Pandemic

05 Jan 2021

During the COVID-19 Pandemic, Youth@CLC, youth advisory panel of the Children’s Law Centre, continued essential work on REE Rights Responder and REE Live Chat alongside legal experts within CLC and tech team, DAMGEO. The Youth Advocates have since been awarded Runners Up in the Pearson’s World Changer Awards, Business and Technology category 2020.

The Pearson World Changer Awards were aimed at young people who were taking their learning to the next level with the goal of making a positive impact on the world. Youth@CLC highlighted their passion and commitment to children’s rights alongside examples of the impact they have had and how their education has inspired and supported their work.

Despite the difficult circumstances faced by all throughout 2020, Youth@CLC were involved at all stages of continued REE development, from deciding what it should be called, what colours it should use, what information should be included and how to make it accessible. So far, REE Rights Responder has reached over 2000 young people and is continuing to be improved each day.

See the Winner’s Showcase here.

Orla McGinnity, youth advocate with youth@clc during the development of REE said: “I have learnt so much and am so grateful for my time in youth@CLC and I always looked forward to every meeting! It is crazy how little I knew about my rights before I joined! I miss everyone at CLC a lot and hope REE continues to grow, I feel so proud to have been a part of it.”

Sinead McSorley, Youth Participation and Advocacy Worker with the Children’s Law Centre said: “I am so delighted our youth advocates are being recognised for their contribution to the development of REE Rights Responder and REE Live Chat. We in the Children’s Law Centre believe that young people’s voices are crucial, especially when developing a service for all young people in Northern Ireland – we would not have been able to get this far without their help, support and critical eye. I could not be more proud or fortunate to have worked with such a great group.”

What is REE Rights Responder & REE Live Chat?

REE Rights Responder is the first online legal chatbot designed for young people under 18 to ask questions about their rights in Northern Ireland. We found that when we searched for information on young people’s rights in NI, we always found information that was specific to English Law or written in complicated legal terms. REE uses Artificial Intelligence to answer questions from young people on their rights relating to mental health, employment, homelessness, and more.

REE Rights Responder is always there, always safe, always right, always anonymous, always confidential and never judgmental.

REE can also direct young people with more complicated questions to speak to a live legal advisor through REE Live Chat, an online live chat service designed to connect young people with complex legal questions to a live legal advisor within the Children’s Law Centre or to other organisations for different types of support.

What’s next for Youth@CLC?

Youth@CLC hope that this project could affect policy change as young people have a right to know and understand their rights – we hope our impact so far gives government an incentive to implement compulsory rights awareness raising sessions in schools and in the community.

Our Youth Advocates hope to inspire other young people to get engaged in projects affecting change in their communities, particularly those which aim to improve the knowledge and understanding of rights.

Throughout 2021, youth@CLC will continue creating and developing new content, information and advice services for young people including for younger children. To find out more about the group and to get involved click here.

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Systemic Failure on Children’s Rights in Northern Ireland

16 December 2020

A report submitted by the Children’s Law Centre to the UN Committee on the Rights of the Child paints a bleak picture in relation to children’s rights in Northern Ireland. The report demonstrates a systemic failure to incorporate the principles of the United Nations Convention on the Rights of the Child within legislation, policy and practice. This has left children’s rights in Northern Ireland far behind internationally recognised standards.

The ‘List of Issues Report’, compiled in partnership with stakeholders in Northern Ireland, seeks to inform questions posed to the UK government and NI Executive ahead of the next examination of the UK Government by the UN Committee on the Rights of the Child.

Download the report

Speaking after submitting the report, Children’s Law Centre Director, Paddy Kelly said:

“The NI Executive is failing children and young people in Northern Ireland. There has been a complete failure to make progress on concluding observations and recommendations since the previous examination by the UN Committee on the Rights of the Child. This has led to systemic failures, with no comprehensive framework to provide strong protections for children’s rights in Northern Ireland.

“The list of delays on key issues is almost endless. The Children and Young People’s Strategy has not been published and it is unclear if this is to be accepted as the delivery mechanism for UNCRC implementation. No efforts have been made to raise the age of criminal responsibility, and corporal punishment in the family remains lawful with no plans to repeal the legal defence of ‘reasonable chastisement’. Homeless children are still not being provided with suitable accommodation and medically fit children with complex needs are not able to leave hospital due to the lack of suitable accommodation in the community. Likewise, children with Special Education Needs continue to suffer due to a long list of operational failures and delays.

“This is simply unacceptable and failure to address these issues is having a devastating impact on the lives of children and young people in Northern Ireland. Things have been made even worse by COVID-19 which has exposed and exacerbated many pre-existing problems. Where we previously saw gaps in the protection of children’s rights, we are now seeing chasms.

“The current situation for children in Northern Ireland is grave and the Children’s Law Centre is seeing this daily in our work. We need to see immediate action to address these problems ahead of examination in 2022.”

NOTES:

  • The Children’s Law Centre is an independent charitable organisation established in September 1997 which works towards a society where all children can participate, are valued, have their rights respected and guaranteed without discrimination and every child can achieve their full potential. The organisation is founded on the principles enshrined in the United Nations Convention on the Rights of the Child
  • The Children’s Law Centre operates a dedicated free phone legal advice line for children and young people called CHALKY and provides legal information through an online platform known as ‘REE’ and legal advice through ‘REE Live Chat’ – https://childrenslawcentre.org.uk/clhexpert/
  • The Northern Ireland NGO Stakeholder Report to Inform the UN Committee on the Rights of the Child’s ‘List of Issues Prior to Reporting’ can be found here, the supporting evidence report can be found here
  • The Northern Ireland NGO Stakeholder Report to Inform the UN Committee on the Rights of the Child’s ‘List of Issues Prior to Reporting’ has been endorsed by 48 organisations
  • The Children’s Law Centre would particularly like to acknowledge the work of Deena Haydon in drafting the report, the National Children’s Bureau and Include Youth for their support in the compilation of the report and NICCY for their support.
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Children’s Law Centre Joins Calls to #MakeOurFutureFair

10 December 2020

To mark Human Rights Day 2020, the Children’s Law Centre took part in a call on the First and deputy First Ministers of Northern Ireland, and all other political parties, to support the delivery of a Bill of Rights for Northern Ireland.

Video by the Human Rights Consortium

“A Bill of Rights would help our elected representatives and our civil servants make decisions that advance human rights for everyone”

Paddy Kelly, Director, Children’s Law Centre

In a video by the Human Rights Consortium, launching the #MakeOurFutureFair campaign, Children’s Law Centre Director, Paddy Kelly, added her support to the call.

You can find out more about the #MakeOurFutureFair campaign here.

Children’s Law Centre Signs Letter in Support of the Human Rights Act

10 December 2020

Today, on global Human Rights Day, the Children’s Law Centre has joined over one hundred organisations to sign an open letter in support of the Human Rights Act.

The Human Rights Act is essential in protecting the rights of everyone in our society, including children and young people. It was enacted to protect the 16 fundamental rights, as laid out in the European Convention on Human Rights and enshrine those rights in domestic law. Any attempts to weaken or undermine those rights will have a direct impact on the rights of children and young people in Northern Ireland.

This year has underpinned the vital importance of the Human Rights Act and the protection of rights in general. The unprecedented impact of the Covid-19 pandemic has placed a huge stress on the rights and freedoms of everyone, but particularly young people, people with disabilities, carers and families. Sweeping powers have been introduced with very little scrutiny. These powers have had a hugely negative impact on protected groups of people, with serious human rights implications.

In times like these, the Human Rights Act is particularly important in protecting hard fought rights and freedoms, as well as placing checks and balances on government’s power.

That is why the Children’s Law Centre signed this letter today, calling on the Prime Minister and all political leaders to stand with us in support of the Human Rights Act.

The open letter is coordinated by the British Institute of Human Rights. Issued on the 10 December, global Human Rights Day, the open letter highlights the extraordinary events of 2020, and in particular the pandemic, noting that “human rights must not be an afterthought in times of crisis; human rights were born of disaster and must guide the Covid-19 response and recovery”.

Sedated and abandoned: the struggle to care for my disabled daughter during lockdown

From one week to the next Lauryn, 17, went from having a full package of support for her severe learning difficulties to having nothing. Instead she was put on diazepam

Tina Fyfe

12 October 2020

Lauryn loved to walk. She would walk anywhere and she would walk for hours. She would walk in the countryside and through the woods. She would walk around the streets of East Belfast where we live.

She is a 17-year old person with autism, severe learning difficulties and mood disorder. When the first coronavirus lockdown began, she stopped walking. She would get up, go downstairs and sit in front of the TV, a device in her hands, scrolling through it to find new toys to buy. She would do that almost all day.

Lauryn is my daughter and the pandemic has brought our family close to breaking point. It didn’t have to be this way. If the government had fulfilled its legal obligations to us, the last six months would have been different.

We would not be beaten and bruised because of the way her mood swings have been exacerbated by the situation we are in. We would not have had to go to our neighbours to explain that it’s her attacking us, not us attacking her. She would not have been put on a new cocktail of drugs as a last resort to manage her behaviour. We would not have had to hold our daughter down on the floor every day to try and stop her banging her head as hard as she can against any hard surface and against ourselves.

When the lockdown began, her school closed and with it all the support she gets, from occupational therapy to art therapy, ended. While the children of key workers had somewhere to go Lauryn, who requires constant supervision, was left at home. No emergency provision or supervised education placement was granted despite the efforts of our family, the Children’s Law Centre, our MP and our child psychiatrist.

During lockdown, my mother died. My son went into hospital for an operation. My mother-in-law was diagnosed with dementia. The grief is incredible but I have not been able to grieve. I went to my mother’s funeral but then, because the support we had been promised was retracted, I had to go home straight afterwards to look after Lauryn. I couldn’t even go to my own mother’s wake. We have just had to continue moving from one day to the next, in a constant state of emergency, always feeling as though we are about to crack.

Lauryn is a very routine-orientated person and during lockdown her routine has changed completely. She sits on the sofa all day, dictating what we can or cannot watch on TV. Normally, we wouldn’t give in to such demands but in order to try and avoid meltdowns we have been giving in to her a bit more than usual. She has become very lethargic and refuses to do anything for herself, demanding that others do it for her, shouting, “Mummy, help” or “Daddy, help”. She even shouts out in the night for certain toys that she wants, ones we can never find.

In the absence of having her special educational needs met, her behaviour escalates. She attacks us and she attacks herself

A lot of the time, frustration about not knowing what’s going to happen next sets Lauryn off. Because of her autism, she craves certainty, structure and control of day-to-day activities. In the absence of having her special educational needs met, her behaviour escalates. She attacks us and she attacks herself. I have to lock myself in rooms and people outside are thinking that it’s Lauryn being attacked, not me. She’s screaming, “Mummy, stop, stop” because I have the door closed. She wants the door to be opened so she can attack me. The neighbours tell me not to worry but it’s embarrassing having to go to them and explain what’s happening.

Since the lockdown began we have asked again and again for help from the Department of Education, the Education Authority (EA) and from Lauryn’s school. It has been a humiliating, degrading and traumatising experience. I used to work full-time but had to take redundancy last year in order to look after Lauryn. Now I work part-time as a teaching assistant but even that feels close to impossible.

At one point, later on in the first lockdown, I filled in the “Vulnerable Child” form on the EA website, which was the process made available at a late stage to seek help if the child’s school was unable to offer a supervised education place. Weeks later I got an automated response that told us we wouldn’t be helped and concluded:

“As you may be aware the school is currently closed. I have made the Principal aware of the application and should they be able to open, a risk assessment will be carried out. I will come back to you if I receive any more information.”

No-one came back to me. An alternative specialist school placement was finally secured in August, but that was swiftly interrupted due to positive Covid cases.

Her dose of anti-depressants was doubled. She was then put on a huge dose of diazepam

What has happened instead is that drugs have been thrown at the problem. Lauryn had always been on medication to help her sleep, but during the lockdown she has been chemically restrained. Her 100mg dose of the anti-depressant Sertraline was doubled to 200mg. She was then put on a huge dose of diazepam, and we’re currently working with her doctor on slowly reducing that. The withdrawal is hellish.

Rather than going to school – rather than putting in place measures to respond to this extraordinary situation – they are medicating the problem, and if there are horrendous side-effects for us to deal with then so be it. Lauryn’s consultant psychiatrist has indicated that this chemical restraint would have been unnecessary if she had the structure and routine of school attendance. I am sure it is also contributing to her lethargy and to her new refusal to walk.

Rather than find respite in nature, we have the indoors and we have the internet, which she uses to buy toys. Lauryn’s obsession with toys is longstanding but there is no escaping it now. When she was little, she used to think that they came alive when she went to sleep. Then she wanted to stay up and watch them come to life. Then she wanted to stay up, watch them and film them on her iPad. In the daytime, all she wants to do is look for new toys to buy on the internet. She can’t talk about anything else, but then once she’s bought that toy, it gives her satisfaction for about an hour and then it’s on to the next thing.

There are toys that she cherishes, but there are many more that are bought, played with for an hour, and then discarded. We spend thousands and thousands of pounds every year on these toys. The house is buckling under the weight of them: characters from television shows, furry animals, dress up dolls, figurines, you name it. If she watches a programme on TV she can never just buy the toy for one character, it has to be the whole set. The toys themselves are always cheap and cheaply made, but so often they come from China or the US, so the shipping costs are exorbitant.

It’s like a metaphor for our society, really. People think that these cheap products will make them happy but they don’t. When Lauryn is at school, she can’t get online to buy toys because she’s not allowed her phone. At home, if we try and stop her she flies into a rage and she won’t calm down until we let her get back to scrolling and buying. The fallout if we tried to do anything more to stop her would be horrendous. The internet is the devil. Ebay is the devil. Lauryn’s speech is extremely limited but she can find anything she wants online.

I’m not a negative person by nature, but I feel totally overwhelmed and am not sure I can carry on. The threat of a second lockdown looms on the horizon and we are terrified that we will be placed back in the same untenable position, at home without support of any kind. If we don’t get any help this time round, I’m not sure what will happen to our family.

Told by Tina Fyfe to Oscar Rickett

Watch our video interview with Tina and the charity that is helping her and others like her. This story is part of our series The Unlawful State: Stories from a Pandemic where we lift up the voices of those whose lives are being disproportionately affected by the coronavirus crisis.

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