From Anaphylaxis to Advocacy: My Journey to Strasbourg

31 July 2025

As part of our blog series, Youth@CLC member Elodie Bloomer outlines her journey to becoming a youth advocate on the international stage. To receive these blogs directly to your inbox – and to make sure you don’t miss out on any of the latest news from CLC- sign up to our newsletter ‘Child Rights Matters’.

Written by Elodie Bloomer

We all universally live with the individual health of our own bodies and our minds. In a world run by adults, it seems that children’s individual rights, particularly in relation to medical issues can sometimes seem secondary to the wishes and wisdom of parents and guardians.

Every child has the right to the best possible health under the UN Convention on the Rights of the Child (UNCRC). The UNCRC also recognises that we, as children, have the right to express our views in all matters that affect us.

There is no issue that may be considered as important as our own health.

We understand that the priority in every health decision must be in protection and to preserve life, as is the ethos of every practising physicians code of ethics, the Hippocratic Oath and the Declaration of Geneva, but we also need to have our say about decisions about the health of our own bodies and minds.

As an anaphylaxis sufferer and having had interactions with both emergency departments and hospital outpatient centres, this issue is one that is very close to my heart. All children have different levels of knowledge about medical matters but one thing that unites all people, regardless of our age, is our ability to feel pain as well as fear. Both can become overwhelming when you are involved in medical situations ranging from an emergency, to going to the doctor who perhaps only speaks to your parent or guardian and not directly to you.

The Journey to Advocacy

Through my work with The Northern Ireland Commissioner for Children and Young People (NICCY) on children’s rights, I became involved in the European Network of Ombudspersons for Children (ENOC), where we focused on the right of children to participate in health decisions, taking the view that it was hugely important that we educate children on this clearly and openly.

As part of this we considered our own experiences as children – what we want to know, how we want to be educated and treated and to ensure that we, as children, have some control over our own bodies and our health.

Along with ten other young people from different member states and backgrounds, I and another NICCY member worked for a period of six months alongside Child Rights Connect through online workshops to create a universal written guide for children to be used alongside the general guide that the Council of Europe had created for the use of parents, practitioners and professionals on Children’s Participation in Decisions about their Health

We wanted to produce a guide that children could read easily, find accessible and be educated and supported through clear language and informative but fun illustrations and cartoons. We were so fortunate to work with amazing illustrators who carefully took our vision and put friendly faces and characters to it and helped normalise and explain what overwhelming visits to doctors and hospitals could be like and how our own thoughts, feelings and decisions as children are important.

We called it “Your Health, Your Say.”

In April 2025, I attended the Mid Term Review Conference of the Strategy for the Rights of the Child at the Council of Europe in Strasbourg with some of the other young people who had worked on the child friendly guide. There were a range of workshops that I was able to attend on various children’s rights, and I learned so much from being there. I gave a speech at the conference to introduce the child friendly guide and speak on what we had worked on, setting out the main terms of the guide and the importance of accessibility and education of this right to all children.

I also learned about Comprehensive Sexuality Education through my work with NICCY and whilst attending a conference workshop on this, I was asked to take my learnings and to draft and deliver a speech on this at the summary session of the Conference. This underlined further to me, the importance of education on health as well as healthy relationships.

The Child Friendly Guide to Children’s Participation in decisions about their health can be accessed at – https://rm.coe.int/your-health-your-say/1680b5069f

I can’t overstate the importance of the right for children to be involved in decisions affecting their health. I believe it sets a relationship between patient and their health for life. If ownership, understanding and education in relation to health is not given to children early in life, it may negatively affect their future perspectives on their health decisions.  

I have continued to focus on the protection and promotion of children’s right to physical health through NICCY. Laura from NICCY supported me and another NICCY member as we all travelled together to Jezercica, Croatia in July to attend the European Network of Young Advisors (ENYA) Forum to meet with other youth representatives of the fifteen regions and states to develop rights based policy recommendations to support the fundamental right of children to physical health.

This was an incredible inspiring few days that uncovered so much learning in a relaxed way. We made many friends and worked with the other youth representatives to understand the challenges to the fundamental right in their own states. We combined our individual ideas and thoughts to create an achievable basis for policy recommendations that we hope will be adopted by the ENOC General Assembly this coming September.

Lived Experience and Delays

Through my own experience, research and work on the main issues, I feel that the protection and promotion of children’s right to physical health in Northern Ireland is affected firstly and most crucially by delays in basic access to services. The waiting list for outpatient appointments for children is often over a year. I have experienced this myself. I suffered life threatening anaphylaxis in May 2024 and I was scheduled for an urgent outpatient appointment with allergy clinic following my attendance at the Emergency Department that saved my life. I received my urgent appointment in April 2025, some eleven months later.

The implications of the weeks of waiting for help are not just physical; they are also psychological. Their impact, at best, is stressful disruption to our lives in the withholding of key knowledge on our own health. Knowledge is power and we are extremely vulnerable without it. At worst, these delays are potentially and actually life threatening.

In less urgent medical circumstances, the wait for treatment can turn from months into years, which raises the important issue of early intervention.The earlier that many health issues are treated, the better the outcome is for the patient. This is applicable not just on a physical level but also on a psychological level. The longer the trauma, the more difficult it is to recover from the psychological scars that are inevitably imprinted by the effects of a health condition that perhaps leads to a patient being unable to attend school, participate in sport or socialising. Life becomes more limited and smaller.

The longer we are ill, the less hope that we have of recovering. We are clothed more in vulnerability than empowerment.

This leads us into another major issue uncovered that is the inevitable link of our physical health and our psychological health. Physical health issues often ultimately lead to psychological health problems, be it from medication side effects, dealing with long term pain or the more limited ability patients may have to enjoy life. It is a connection that necessitates the upholding of both elements of health, regardless of the diagnosis for us as children. The close link of both requires a dual therapeutic approach.

A Healthy Education

Another important issue is the role of the education system in Northern Ireland and how it can be utilised to help with children’s health protection and promotion. There are province wide vaccination programmes and basic services but there is a real need for more support with schools in their support of children suffering both physical health conditions as well as psychological ones. More general education and information would be helpful in the spheres of neurodiversity, puberty, asthma, diabetes and more matters that could help educate us that in turn will give us more of an understanding and ownership over our health. Food, nutrition and health education, as well as active offerings within school, would be important.

Comprehensive Sexuality Education, a sometimes-controversial topic in Northern Ireland, should be more easily accessed and delivered. Further, a more tailored and linked approach between health and education would be valuable in allowing us to manage our own understanding and would help us make choices over our own health.   

Empowering Young People

The key point of all of this is the centring of the child in the heart of the decisions that are made about their health. This a key element of the Oviedo Convention of the Council of Europe which underlines the importance of children’s opinion being considered according to their age and maturity.

So many ways to protect and promote children’s rights to physical health are available but they require the will of our government in Stormont as well as the financial backing of Westminster. The budgets are tight, but savings and efficiencies must be made to improve matters as the long-term health of our children, and therefore fundamentally our country’s future, depends on it.

I am so grateful to NICCY, Child’s Right Connect, ENOC, ENYA, the Council of Europe and CLC for giving me the opportunity to learn further about this area of children’s rights that means so much to me. I would also like to thank my allergy consultant, Dr Caoimhe Glancy for all her help and inspiration.

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Blog: ‘Nothing About Us, Without Us’

23 March 2025

In our latest blog, VOYPIC Young Rep, Michelle Chapman, highlights her work representing Northern Ireland at the 28th Annual Conference of the European Network of Ombudspersons for Children.

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Written by Michelle Chapman
VOYPIC Young Rep

I am a VOYPIC Young Rep and in September 2024 I had the amazing opportunity to travel to Helsinki, Finland, to represent Northern Ireland at the 28th Annual Conference of the European Network of Ombudspersons for Children (ENOC). The theme of the conference was the rights of children in alternative care, which is something important to me because I’ve grown up in care myself.

I was part of the European Network of Young Advisors (ENYA); a group of young people from across Europe who came together to make sure our voices and experiences were included in big conversations about care.

Preparing to Represent Northern Ireland

Before heading to Helsinki, I worked with NICCY and other young people with care experience, to talk about what’s working and what’s not in the care system in Northern Ireland. We discussed things like stability in placements, the importance of feeling listened to, the need for all adults who work with children and young people in care to be properly trained and supported, as well as the support needed when you leave care. It was important to me that I wasn’t just sharing my own views but also representing my friends and other care-experienced young people back home.

We travelled to Bratislava in July, with Laura from NICCY and Brenda from VOYPIC supporting us. Brandan (another VOYPIC Young Rep) and I shared our experiences of care in Northern Ireland and got to meet other Young Advisors from different countries, and learn about alternative care across Europe. It was eye-opening to hear that a lot of us faced the same issues, no matter where we were from.

One of the recommendations that I made at the Forum went on to be included in the final list of recommendations presented to ENOC.  This was “nothing about us, without us”.  This is something that is very important not only to me, but to the young people from Northern Ireland I was representing. 

I am a VOYPIC Young Rep and through this role I am lucky enough to have opportunities where I am part of ensuring that our voices are at the heart of decisions made about our lives.  VOYPIC stands for Voice of Young People in Care, and including young people’s voices is at the heart of everything VOYPIC does.  So many people at the conference wanted to know more about VOYPIC and the work it does, as they would love to have an organisation like VOYPIC in their country.  It made me realise that I’m lucky to have VOYPIC and all of the positive relationships I have made since I became involved with them a few years ago.

Taking the stage in Helsinki

Brenda, from VOYPIC, and I travelled to the ENOC conference in Helsinki with Laura from NICCY again, but we were also joined by Joanne from NICCY as well as Chris Quinn, the Children’s Commissioner for Northern Ireland.  I got on really well with everyone on the trip and loved the craic, even with all the cringey dad jokes, Christopher!

Walking into the conference was a bit overwhelming at first, but as soon as I saw our wee clan I felt more at ease. I knew they were here for me and I had worked with Brenda on preparing what I was going to say, so I felt ready for my role on the panel, and presenting my part of the presentation myself and the other Young Advisors prepared.

I presented part of the quiz, where we asked the audience- made up of ombudspersons, policymakers, and professionals who work with children in care- to stand up if they agreed with the statements we made.  A lot of people came up to me afterwards and complimented me on the quiz and how I brought my personality and humour into it, which really made it memorable for them and helped get our message across.

Learning and Looking Ahead

Being part of this conference made me realise how many people actually want to make things better for children and young people in alternative care. I also learned so much from hearing about care systems in other countries.

One of the biggest things I’ll take away from this experience is confidence. On our way home, Chris asked me what my takeaway was? I said that I realised I am capable of a lot more than I thought I was.

I’m so grateful to NICCY for the opportunity and to VOYPIC for supporting me on this journey, especially Brenda from VOYPIC, who traveled with me. Brenda grew up in care too, and having her there made a huge difference. She understood how I was feeling and reminded me that I deserved to be in that room, speaking up for myself and others.

Final Thoughts

Going to Helsinki was an experience I’ll never forget. It showed me that young people in care aren’t just statistics— we have real opinions, real experiences, and real solutions. We just need more people to listen.

It wasn’t all work either! I made some brilliant memories and had great craic on both trips with treasure hunts, sightseeing, swims in sea pools and my infamous napkin boats at our dinner with the Ombudspeople in Helsinki as well.

At the VOYPIC Care Day Awards, I was lucky enough to win the Community Champion award for my contribution to the care experienced community, for my role on the ENYA forum and at the ENOC conference.

I hope that the conversations we had at ENOC lead to real change, not just in Northern Ireland but across Europe. And I hope that more young people like me get the chance to speak up, because when we do, amazing things can happen.

Blog: On the Road to Rights

17 January 2025

In our latest blog, NICCY youth panel member, Charlotte Wysner, outlines her work to educate others about rights, and her aspiration to have the voice of children and young people heard.

Make sure you don’t miss out on our blogs, plus all our latest child rights news by subscribing to our Ezine ‘Child Rights Matters’.

Written by Charlotte Wysner
NICCY Youth Panel Member

I have been a part of the Northern Ireland Commissioner for Children and Youth (NICCY) for over a year now. Throughout my time I have been given an open space to share my opinions and have my voice heard. I have worked on projects from RSE education in schools to the more recent children’s rights workshops.

On the 19th of November, I delivered one of several workshops carried out by NICCY about Children’s rights across Northern Ireland. Together, we as NICCY set a goal to educate children and youth on their rights and the UNCRC as well as find out their views on how these rights are being upheld and respected.

I delivered one workshop to two groups of around 20 students aged 12-17. The workshops all went very well, and I know that in my case I learnt just as much from the attendees as I hope they did from me.

Through this experience, I was also given the rare opportunity to chair a panel between heads of NICCY, Translink, the local Council and the groups of children and youth attending all the workshops provided by NICCY and Translink Youth Form (TYF) that day.

The whole day and experience provided me with a further in-depth understanding of a broader range of children’s rights that children and young people of Northern Ireland don’t feel are being respected or protected.

Throughout my time in these projects, I learnt about the importance of the UNCRC as well as the power it holds.

Having been a part of conversations surrounding the anti-age discrimination proposals that were discussed recently which could potentially exclude under 16 year olds, it has become ever clearer that these rights that are so powerful and so important are not being upheld.

This is nothing less than a crime against our country’s youngest generations. How can we ever expect our youth to grow up with a confident understanding of themselves if no one listens to them or abides by the rules written in International Conventions?

Being part of NICCY has taught me so much about my voice and opinions as well as their importance. It has given me confidence in myself as a public speaker and has helped develop me as a person.

Children and youth in Northern Ireland, and throughout the UK, should feel the same level of security and pride in their voices, their rights are being respected and upheld in full.

These ideas are very possible – we simply need to redirect our priorities back onto the correct path. I hope to help over my time at NICCY to make a positive difference in these issues and witness the growth of Northern Ireland into a new era, where those in power understand the importance of children and young people’s voices.

Blog: Equality in Education

9th September 2024

Member of the NI Youth Assembly, Clodagh McKenna, discusses her recent participation in a CLC co-design workshop and outlines how children’s rights help guarantee equality in education.

Written by Clodagh McKenna

I am a member of the Northern Ireland Youth Assembly and I am passionate about making a positive change in young people’s lives. I felt inspired when the Youth Assembly recently met with young people from Children’s Law Centre, Angel Eyes, VOYPIC and Barnardo’s NI’s Syrian Youth Voices to aid the development of the education and Special Educational Needs sections of REE Rights Responder which offers free online legal advice to children and helps them understand what their rights are.

Children’s educational rights is a topic that is dear to me because I want to ensure that every child has access to a quality education. Unfortunately, education still remains an unattainable right for millions of children around the world. Almost 60 million children of primary education age are not in school. [1]This leads to adults not having the skills necessary to be able to improve both their living conditions of those and of their children, thus leaving the family to fall further into poverty and unable to escape this cycle.

Article 28 of the United Nations Convention in the Rights of the Child (UNCRC)[2] says that “children and young people have the right to education no matter who they are: regardless of race, gender or disability; if they are in detention or if they are a refugee.” Children’s educational rights encompasses the right to access education that is free from discrimination, the right to be able to learn in an inclusive and safe environment and the right to receive a quality education that will help them equip the skills and knowledge that will prepare them for the challenges of the modern world. By being able to guarantee these rights, this can empower children to achieve their full potential, contribute meaningfully and create a difference in society. In time, this could help break the cycle of poverty and inequality.

Department of Education statistics show that in the academic year to June 2023, 96,000 pupils had chronic or severe chronic attendance issues. An additional 100,041 children were in the “at risk” category.[3] The significance of education is a fundamental right that all children should have, as it lays the foundation for a child’s future successes, life and well-being. No child should ever miss out on an education, as it is the right of the child to receive an education. It is crucial to uphold children’s educational rights; ensuring all children regardless of their background, or circumstances that they face, are granted equal opportunities to learn and to grow.

By advocating for children’s educational rights, we can promote inclusive and equitable educational systems. This can develop a brighter future for every child so that all children can receive an education that they deserve.

Find out more about REE Rights Responder at reerights.com

Image of a group of young people standing on the steps of The Great Hall in Stormont's Parliament Buildings.

References:

[1] Max Roser (2021) – “Access to basic education: almost 60 million children of primary school age are not in school” Published online at OurWorldInData.org. Retrieved from: https://ourworldindata.org/children-not-in-school

[2] Convention on the Rights of the Child | OHCHR

[3] Department of Education Circular 2023/11 – Attendance Guidance and Absence Recording by Schools­: https://www.education-ni.gov.uk/publications/attendance-guidance-absence-recording-by-schools-circular-202311

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Blog: Give Us Votes at 16

6th August 2024

In this blog, Eva Bradley, talks about why she is passionate about securing the vote for 16 and 17 year olds and her activism as part of Politics in Action.

Written by Eva Bradley

Article 25 of the International Covenant on Civil and Political rights explains that every citizen shall have the right and opportunity to vote in elections, which shall be by “universal and equal suffrage”. Lowering the voting age to 16 is the next logical step on the journey to making our democratic system more accessible and inclusive.

In the past number of years, many countries, including Austria, Brazil, Scotland and Wales have lowered the voting age to 16. This has sparked debate and conversation all over the UK about lowering the voting age, and about the participation of young people in our democracy.

Image of young person with a megaphone. Pull quote reads: "Having the right to vote will help give young people the democratic voice they deserve" - Eva Bradley

As a 17 year old, I only missed out on being able to vote in this election by about eight months. However, despite not being able to vote, this didn’t stop me, or many other young people, from very closely following the election results.

For years now, I’ve been highly interested in politics and involved in youth activism, and I recently joined the Votes at 16 campaign group. I have always been very passionate about youth participation in democracy and specifically the right to vote at the age of 16. There are so many reasons why, but one of the main ones for me was that at 16 you can work and be taxed. If you are paying into the system, you should always have the right to vote.

Something I often hear from people who are opposed to lowering the voting age is that 16 and 17 year olds are too immature and aren’t educated enough to vote. While it is true that here in Northern Ireland our political education isn’t great, our campaign is also advocating for better political education in our curriculum. Giving our young people the right to vote would be a crucial aspect of political education. They can go from learning about politics at school to actively participating in our electoral democracy. Many young people aged 16 and 17 are already highly politically engaged. A lot are very political without even realising it!

Lowering the voting age to 16 has so many benefits. There has been evidence from Scotland, where the voting age was lowered to 16 in 2013, that 16 and 17 year olds there who started voting at this young age were likely to continue voting throughout their life. Many experts believe this makes a great case for lowering the voting age to 16 everywhere.

Image of a poster at a protest. The poster has a drawing of earth, with the text 'system change, not climate change'. Pull quote reads: "Being able to vote from age 16 would ensure that politicians take us young people seriously in the matters that affect us, giving  us a say on issues that will impact our present and future."

In 2014, 75% of 16 and 17 year olds voted in the independence referendum in Scotland, and 95% of them said they’d vote again.

Article 12 of the UN Convention on the Rights of the Child recognises a young person’s right to express their views freely “in all matters affecting the child, the views of the child being given due weight in accordance with the age and maturity of the child”. Being able to vote from age 16 would ensure that politicians take us young people seriously in the matters that affect us, giving  us a say on issues that will impact our present and future – particularly when it comes to the climate crisis. As young people, we will have to live with the consequences if we don’t take action now.

Having the right to vote will help give young people the democratic voice they deserve. In election campaigning, many parties, including Labour, now the biggest in Parliament, had a commitment to lowering the voting age in their manifestos. I sincerely hope that we see some action on this soon.

You can read more about the Politics in Action Votes at 16 campaign, and sign the petition, at https://www.politicsinaction.org/campaigns/votes-at-16

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